New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest...
Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting Illness and you’ll be met by blank stares–or at least, you would have–until now. With 1...
View ArticleGLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for...
Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10 Americans living with rare diseases, the need for access to powerful,...
View ArticleNew Rare Toolkit, Genetic Testing: Is This My Path to a Diagnosis?
Can new testing reveal your diagnosis? That’s what our latest toolkit discusses as it delves into subjects like whole genome sequencing, exome sequencing, and working with genetic counselors. Genetic...
View ArticleNew RARE Toolkit Release: Access to Unapproved Medicine
What if the medication you needed wasn’t available in the United States? Many patients with rare disease face this dilemma. Our newest toolkit, Access to Unapproved Medicine: Is It an Option for Me?...
View ArticleNow Online: Taking Control: Gaining Independence as a Young Adult with a Rare...
Transitioning to adulthood is hard enough. Doing it with a rare disease? That may require some guidance. So, Global Genes has put together a new RARE Toolkit called “Taking Control: Gaining...
View ArticleNew RARE Toolkit – Exploring Treatment Options for Rare Disease: Cord Blood...
For many, the statistic that there are drug treatments for only five percent of the rare diseases currently classified can be heart-breaking. But what if there was one for you? An FDA-approved cellular...
View ArticleNew RARE Toolkit “Searching For Answers: Contacting Biopharmaceutical...
“I can do that?” This is the question patients ask when it comes to the possibility of working directly with biopharmaceutical companies. As Global Genes explains in this, our latest toolkit, the...
View ArticleNew RARE Toolkit: Pediatric Palliative Care
Today Global Genes announces its newest educational toolkit on pediatric palliative care. This toolkit, created in partnership with the Courageous Parents Network and made possible by Genzyme, tries to...
View ArticleNew Educational Toolkits from Global Genes Demystify Rare Community’s Biggest...
Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting Illness and you’ll be met by blank stares–or at least, you would have–until now. With 1...
View ArticleGLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for...
Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10 Americans living with rare diseases, the need for access to powerful,...
View ArticleNew Rare Toolkit, Genetic Testing: Is This My Path to a Diagnosis?
Can new testing reveal your diagnosis? That’s what our latest toolkit discusses as it delves into subjects like whole genome sequencing, exome sequencing, and working with genetic counselors. Genetic...
View ArticleNew RARE Toolkit Release: Access to Unapproved Medicine
What if the medication you needed wasn’t available in the United States? Many patients with rare disease face this dilemma. Our newest toolkit, Access to Unapproved Medicine: Is It an Option for Me?...
View ArticleNow Online: Taking Control: Gaining Independence as a Young Adult with a Rare...
Transitioning to adulthood is hard enough. Doing it with a rare disease? That may require some guidance. So, Global Genes has put together a new RARE Toolkit called “Taking Control: Gaining...
View ArticleNew RARE Toolkit – Exploring Treatment Options for Rare Disease: Cord Blood...
For many, the statistic that there are drug treatments for only five percent of the rare diseases currently classified can be heart-breaking. But what if there was one for you? An FDA-approved cellular...
View ArticleNew RARE Toolkit “Searching For Answers: Contacting Biopharmaceutical...
“I can do that?” This is the question patients ask when it comes to the possibility of working directly with biopharmaceutical companies. As Global Genes explains in this, our latest toolkit, the...
View ArticleNew RARE Toolkit: Pediatric Palliative Care
Today Global Genes announces its newest educational toolkit on pediatric palliative care. This toolkit, created in partnership with the Courageous Parents Network and made possible by Genzyme, tries to...
View ArticleNew Toolkits by Global Genes Educate Patients on Gene Therapy and Health...
Over the past few years Global Genes has been providing patients with easy to understand guides or “toolkits” on everything from starting their own non-profit organization to exploring the road of gene...
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